Check out https://mynucleus.com -- we do whole-genome DNA sequencing from a cheek swab for about $500 (use code savraj10 for 10% off), so no blood drawn as in this example. We also give you your risks for over 2k diseases and, if your partner does the test, predict outcomes for your future kids. Alexis is one of our investors and we have a big announcement coming next week! We also allow download of all raw data and are SOC2 + HIPAA compliant.
What’s stopping a similar crisis that 23andMe customers faced where their genetic data along with their identifying information getting sold to the highest bidder if you ever become insolvent?
Considering how big a deal that was at the time, and how strong a differentiator it would be, it’s notable how absent from the homepage. It’s nice that Nucleus claims not to sell the data, but 23andMe had similar claims, it wasn’t strong enough to prevent genetic data from being transferred if they were to be acquired.
This has always been something I’ve been interested in but so far no company handles privacy concerns of data that’s so deeply fundamentally personal and private in a satisfactory way, and I’m especially apprehensive post-23andMe.
Taking a dice roll on Nucleus not just pulling another 23andMe seems not worth the ~$3000 saving you claim to be offering.
> What’s stopping a similar crisis that 23andMe customers faced where their genetic data along with their identifying information getting sold to the highest bidder if you ever become insolvent?
Nucleus employee here. Nucleus is a medical provider that is providing a medical service and is regulated by medical laws, which extend even through bankruptcy or acquisition. Whereas 23andMe was essentially an entertainment company and was regulated as such, which is what enabled that unfortunate situation to occur.
The problem for me is not getting my DNA sequenced but not having to trust a third party with my genetic information. As wirtten in the article, they only achieved a 13% coverage (even less if because you have to assume that not all base calls are correct), which is not useful for any sort of genetic analysis. So the title is really misleading.
