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I was at work all day, so I was unaware of any downvoting. I don't believe I was ranting (unless you mean the remark about the purple polka dotted dancing singing pill). The reality of the situation is as extreme as I describe it. I don't think you can get it across in brief without "hyperbole". I have no reason to believe anyone here would want the long version, with the statistics on death rates (mean age of survival: 37 in the US), drug use (many people with CF are on $3000.00 to $4000.00 per month worth of "maintenance drugs" -- ie when they aren't considered "sick"), frequent hospitalizations (many people are go in once or twice a year for a "tune up" -- ie when they "aren't sick" -- and can be hospitalized multiple times per year as they deteriorate)....and on and on. The statistics are really gruesome.

There is good reason why I get greeted with so much shock and hostility by much of the CF community: The things I say can be done fly in the face of everything these people know to be true. I don't see any reason why my statements would be greeted any more warmly and acceptingly here. <shrug>



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